campaigning for suitable education for autistic and SEND children as well as better services for autistic and disabled children and families.

Joined April 2016
551 Photos and videos
Action for ASD retweeted
Did you know that @BorisJohnson's government have quietly changed the elegibility for Warm Home Discount? Disabled people will now NOT be allowed to claim it, despite being the section of people who have the highest energy usage. They're actively punishing us for being disabled.
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Thank you for reporting it. It’s important that things like this are explained
Replying to @Action4ASD
Yes. That is why I reported it. The fact that it took some investigation to work out it was parody demonstrates how dangerous it is.. I, like many believed it was a genuine comment because we know those comments are acceptable to some.
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Well I don’t know whether to take comfort from the parody of it. Sadly this belief is probably in the mind of some and would certainly have been a held belief by some professionals 30 years ago . We do have to wonder whether this was in the mind of some
Replying to @Action4ASD
It's a parody account. That doesn't make it okay. It is still not okay. But take some comfort that it was a very bad horrible joke rather than an innate belief. I reported it anyway because these kinds of jokes still incite hate but it is still not what the author things (I hope)
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WHAT ? What century are we in ? Did I just go back in time and read this ?
Did they say this out loud?
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Action for ASD retweeted
The children "are put in a system which prioritises curriculum and test results over flourishing...These aren’t healthy conditions for young people to grow up in." @naomicfisher is expected to 'fix' children broken by the education system. progressiveeducation.org/the…

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Action for ASD retweeted
NEW POST: #SENDReview Chapter 2: Catriona Moore looks at proposals and questions about national standards, changes to EHCPs and more. She asks how the DfE will ensure public bodies obey new laws any more than they do now? specialneedsjungle.com/sendr…
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Action for ASD retweeted
No mp should be in any role they do not have first hand lived experience of , it takes someone that's lived our lives to understand them.
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Action for ASD retweeted
12 Apr 2022
All children of compulsory school age are legally entitled to receive a suitable full-time education. Schools cannot place children on a part-time timetable, save in exceptional circumstances to meet a pupil’s individual needs. Read more about this here: ipsea.org.uk/informal-exclus…
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Action for ASD retweeted
Thread shot, article chaser
NEW: Children are having to wait years for an autism appointment amid the crisis in NHS mental health services - with a five year wait in one case Parents are left stranded as their children descend into crisis and hospitalisation By me, for the Observer theguardian.com/society/2022…
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Action for ASD retweeted
This is something I can get behind and local authorities should ask to be briefed regularly.
Excited to attend this! What would your actions be for the Down Syndrome Clinical Excellence Network? A group of speech and language therapists with a special interest in #DownSyndrome @Wouldntchangea1 @dontscreenusout @DSAInfo @RCSLT @PositiveaboutDS @LejeuneFor @DownsOxford
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Action for ASD retweeted
For parents and young people living in Newham, it isn't news that the Borough has inadequate child disability healthcare, low quality EHC Plans, 2 year waiting lists for ASC assessments, weak leadership. Another Written Statement of Action needed in SEND: reports.ofsted.gov.uk/provid…

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Action for ASD retweeted
My 16 yr old daughter has moderate #learningdisabilities. In the night she built her dressing table by herself (I had been putting off for wks). She followed the awful instructions perfectly. I only saw it built when I went to give her her meds this morning! I am so proud of her!
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Action for ASD retweeted
One of the often cited purposes of education is to prepare children for the outside world. Many teachers have never worked in the outside world.
13 Mar 2022
There are teachers who suggest that no one should have a perspective on education unless they have taught in a classroom themselves. Curious to know if those teachers also believe that they shouldn’t have perspectives on parenting unless they are parents themselves.
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Action for ASD retweeted
Update from court We’re all crying happy tears The judge says William should be given a chance
In court with Ami Verden for @BBCNews The mother hoping to convince a judge it is in her sons best interests to have a potentially life saving kidney transplant His hospital argued it is not I can’t imagine what she’s going through She just wants William to have a chance
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Action for ASD retweeted
We’re posting quotes daily at 2pm from the #tourettes community, help us be heard by retweeting daily #TourettesWeMatter @SarahSharpCBiT @TICYorkshire @TTAGpatients @tourettescot @PCamhs @Action4ASD @SEND_Action @ocdaction @AshCurryOcd @speedomick @LpoolSENDCRISIS @letuslearntoo
We want everyone to be able to access a timely diagnosis and treatment regardless of where they live in the U.K. We are calling on the Government to ensure this happens. Help us be heard #TourettesWeMatter
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