Creating better todays and more tomorrows for bladder cancer patients and families since 2005.
Joined January 2011
- Tweets 11,593
- Following 2,896
- Followers 6,532
- Likes 8,383
1,975 Photos and videos
Bladder Cancer Advocacy Network retweeted
Jun 10
Findings from the bladder burden survey: Patient perspectives on communication, trust, and quality of life in #BladderCancer. Meri-Margaret Deoudes, CFRE @BladderCancerUS joins @UroDocAsh @UTMDAnderson to discuss findings from the Bladder Burden Survey. The survey identified delayed diagnosis in women, patient reluctance to discuss bladder cancer due to stigma, and mental health strain as persistent gaps, consistent with prior BCAN and World Bladder Cancer Patient Coalition surveys. #WatchNow > bit.ly/3QvdXcu @WorldBladderCan
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Watch Deion Sanders on @GMA discuss "getting his swagger back" after his bladder cancer treatment last year: youtu.be/CmSyO7VS-aU?si=oGm4…
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How can clinicians integrate ctDNA, ICIs, and ADCs into the management of muscle-invasive bladder cancer?
Continuing education from experts @ERPlimackMD @siadaneshmand and Colleen H. Tetzlaff, MHS, PA-C on emerging biomarkers, personalized treatment strategies, and the importance of a multidisciplinary approach to MIBC care.
@RedMedEd
ALT A medical professional in a white coat and teal scrubs is seated while writing in a notebook. She is holding a tablet in her other hand and wearing glasses. A stethoscope and a blood pressure cuff are placed on the table in front of her. Her expression appears focused and engaged.
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Learn more and register here: redmeded.pulse.ly/vkom9emv4w
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Important bladder cancer research should not be left behind.
BCAN's Continuity Grant provides support for U.S.-based bladder cancer and UTUC projects affected by federal funding cuts or NIH-reviewed, fundable proposals that missed funding due to budget limitations.
Learn more and apply by 6/29.
ALT Image showing the Bladder Cancer Advocacy Network (BCAN) promotional graphic for the BCAN Continuity Grant. The logo is at the top left, followed by "Funding Opportunity" in bold, "BCAN Continuity Grant," and "Apply by June 29, 2026." A red-orange box at the bottom contains a link to learn more: "https://bcan.org/2026-bcan-continuity-grant/". The background has a subtle geometric pattern.
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Learn about the BCAN Continuity Grant:bcan.pulse.ly/szyw7h8k1f
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Bladder Cancer Advocacy Network retweeted
Jun 5
Last Saturday, we joined bladder cancer survivors, caregivers, families, and advocates at the Pittsburgh Walk to End Bladder Cancer. 🧡💙
Thank you to everyone who joined our UPMC team in support of the bladder cancer community!
@BladderCancerUS #bladdercancerawareness
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Bladder Cancer Advocacy Network retweeted
Jun 8
Grateful to serve as the invited speaker at this year’s @BladderCancerUS Walk in Boston and to represent @UMassCancer Cancer Research Office.
Through science, advocacy, and community, we continue the fight to improve outcomes for patients with bladder cancer. @UMass_Medicine
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We are pleased to welcome @divyaajay_uro of @MSKCancerCenter on June 25 at 4 PM ET for a webinar.
Dr. Ajay will share her expertise on urinary diversion options after bladder removal surgery, shared decision-making, and tools that help patients make informed treatment choices.
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Aspirin can cause mild bleeding or worsen existing bleeding in the urinary tract. This may prompt a clinician to run tests that uncover asymptomatic bladder tumors.
New article to read! Aspirin or non-steroidal anti-inflammatory drug initiation and subsequent bladder cancer evaluation.
🔗doi.org/10.1111/joim.70115
#aspirin #bladdercancer #cancer #earlydiagnosis #cystoscopy #NSAID #Uncover
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Bladder Cancer Advocacy Network retweeted
Know a bladder cancer researcher whose federal funding was terminated - or who scored ≤8th percentile at NIH but wasn't funded?
BCAN's 2026 Continuity Grant is now open, awards up to $200K. tinyurl.com/2026CGA
⏰ Apply by June 29, please share widely!
@BladderCancerUS
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Big congrats our BCAN Quale Fellows. And thank you to all the reviewers in this incredibly competitive application cycle We are fortunate to be in a golden age of bladder cancer progress. Thrilling to see that we are able to recruit such talent to the field.
@BladderCancerUS
Congratulations to the 2026 John Quale Travel Fellowship recipients! We are proud to support the next generation of bladder cancer researchers and clinicians as they join us at the 2026 Bladder Cancer Think Tank. Your dedication to advancing bladder cancer research will help shape the future of patient care. @UofCalifornia @MSKCancerCenter @WeillCornell @Yale @theNCI @UW @MoffittNews @UHhospitals
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Congratulations to the 2026 John Quale Travel Fellowship recipients! We are proud to support the next generation of bladder cancer researchers and clinicians as they join us at the 2026 Bladder Cancer Think Tank. Your dedication to advancing bladder cancer research will help shape the future of patient care. @UofCalifornia @MSKCancerCenter @WeillCornell @Yale @theNCI @UW @MoffittNews @UHhospitals
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Bladder Cancer Advocacy Network retweeted
Jun 1
Patient experiences with UGN-102 for recurrent low-grade intermediate-risk #NMIBC: Insights for shared decision making. Presentation by @RuchikaTalwarMD @VUMChealth. #ASCO26 written coverage by @zklaassen_md @GACancerCenter > bit.ly/4voIUhy @ASCO
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Bladder Cancer Advocacy Network retweeted
Jun 1
Outcomes with enfortumab vedotin rechallenge after disease progression in metastatic #UrothelialCarcinoma. Presentation by @MichalSternsch @MSKCancerCenter. #ASCO26 written coverage by @RKSayyid @UAUrology > bit.ly/4viTUgb @ASCO
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Bladder Cancer Advocacy Network retweeted
Every day, about 232 people in the U.S. may hear the words "you have bladder cancer.” Knowing the signs and symptoms is the first step toward earlier diagnosis and care. This #BladderCancerAwarenessMonth, learn more from @BladderCancerUS: bcan.org/facing-bladder-canc… #BladderCancer
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Bladder Cancer Advocacy Network retweeted
May 29
@tompowles1 presents the 3.5 year follow-up of EV-302 & subsequent therapies #ASCO26 @ASCO
OS HR maintained at 0.53!
Subsequent platinum resulted in ~ 21% ORR and is the preferred 2nd line Tx
2/3 rd patients convert from PR to CR
Gratifying to see such remarkable activity of a 1L regimen in mUC after decades!
The possibility of long-term disease control & perhaps cure for some patients no longer seems out of reach!
@Uromigos @TresUramigas @OncoAlert
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Bladder Cancer Advocacy Network retweeted
May 29
Interesting ADC data from #ASCO26 in pretreated metastatic urothelial carcinoma (#mUC).
Key findings from #NEXUS01:
⭐️ ORR 42% and DCR 79% overall
⭐️ ORR 33% and DCR 75% in EV-pretreated patients
• Median DoR 7.4 months in EV-pretreated patients
🔑 #CYP2D6 genotype strongly influenced payload exposure and toxicity risk.
• Most AEs were grade 1–2
• Low rates of neuropathy, ocular toxicity, skin toxicity, and hyperglycemia
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Bladder Cancer Advocacy Network retweeted
3.5 year updates from #EV302 @tompowles1 & discussion @apolo_andrea
For fellows: the trial that changed 1L mUC SOC to EVP, ▶️ meaningful ongoing responses
❓ who can we de-escalate: the IMPROEV trial Dr. Pooja Ghatalia will help answer this
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Bladder Cancer Advocacy Network retweeted
Bladder cancer is a surprisingly common form of cancer, which is why I attended the @BladderCancerUS annual Walk to End Bladder Cancer at North Park this morning. We need to raise awareness of this deadly, but treatable disease and support funding for research.
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