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Der @aerztezeitung Artikel zeigt ein Problem, das viele #MECFS Betroffene betrifft, sehr klar:
„Fatigue, aber keine biologische Ursache weit und breit“ -
und schon steht die somatische Belastungsstörung (SDS, SBS) im Raum.
Mit DSM-5/ICD-11 (1/27) verschiebt sich der Fokus:
Long COVID hasn’t disappeared.
People continue to develop it after new infections—yet the myth that it’s “over” still persists.
Bára’s story shows the reality: after her 3rd COVID‑19 infection in 2025, she became house‑bound with severe fatigue and heart issues.
Large survey on potentially effective supplements and medications for #longcovid & #mecfs . Let’s help to circulate that widely in order to inform subsequent research! Thanks @organichemusic for all your work!
Hi everyone!
I am very excited to announce that I have finally completed a massive #ME/CFS & #LongCOVID treatment survey entitled "TREAT ME"‼️🎉🤩
If enough people respond thoughtfully, I’m confident we may push research in the field forward!🏇
🧵1/3
surveymonkey.com/r/TREATMEAN…
Es ist einer der größten Gesundheitsskandale unserer Zeit, der Energiebündel in Pflegefälle verwandelt. Doch so seltsam es klingt: Corona hat Berlin zum Zentrum der Hoffnung für ME/CFS-Patienten gemacht. berliner-zeitung.de/gesundhe…
How many #MECFS , #LongCovid, post-infectious disease patients, and their respective loved ones are active on Twitter? It would be great to get a rough estimate of how many folks we can mobilize. Please like and RT. Let's see if this works.
⚠️ Wir brauchen #euch!!!
AKTION #Liegenddemo am 19.01.
im Zuge der Beratung des #Bundestags über den Antrag der #CDUCSU zur Versorgung von #MECFS - #LongCovid und #PV - Betroffenen!
Bitte beteiligt euch mit
❗️30€ ❗️ via #paypal an info@nichtgenesen.org
Details im Thread 🧵
Viele Betroffene mit #LongCovid & #MECFS liegen im 3. Jahr isoliert zu Hause. Die Kraft fehlt vielen, um Kontakt zu halten oder an Festlichkeiten teilzunehmen. Bitte ruft bei Freunden / Bekannten / KollegInnen an, lasst sie nicht aus dem Leben verschwinden
washingtonpost.com/wellness/…
Met by coincidence @michaelfranti this year and he performed for us his new song #brighterday . It touched me deeply. I don’t know how often I have heard this the last year and how often it gave me hope on my challenging recovery journey from #longcovid.
Yesterday I heard it again and lots of tears just ran down my face and I got the strong Impuls to share the song and this message. So for everybody who need to hear this: #dontgiveup#justkeeponfighting !!!#MerryChristmas
Many changes are always needed, of course, but I'm seeing a specific need to shift an aspect of how mainstream media reports on #LongCOVID, #MECFS and other complex chronic illnesses. Recently there has been a slew of articles written by "learned doctors" (or even the 1/
Male university students have walked out of their exam in protest against Taliban’s decision to BAN female students from university education.
Several male professors have also resigned so far.
This must happen across the country NOW!
Bitte helft mir eine einfühlsame & zuverlässige Pflegeperson zu finden
Minijob
7,5h pro Woche (30h im Monat )
- deutsch/englisch lesen können
- leise/vorsichtig sein
- kochen können
- selbständig arbeiten
- hygienisch & sauber
- freundlich &höflich
- keine Diskussionen
HIGH-DOSE EPA for LongCovid or ME/CFS?
Recently I spoke w/ an MD who has treated ~40 #pwLC with an Rx omega-3 fatty acid similar to EPA known as icosapent ethyl (IPE, brand name Vascepa) w/ promising results. Turns out, it may help #pwME too.
Details👇
pharmd.substack.com/p/high-d…
Before starting with the theories behind #LongCovid, I have decided to do two videos, preparing the terrain for the quest that is about to come 🧙🏻♂️ Today I bring you “What is Long-Covid?”: a wrap-up and brief explanation of its most common symptoms
youtu.be/S_OJEO5uLLY
„From a healthy young woman who worked in healthcare, exercise 3 times a week and even ran half marathons, to someone who is still a shadow of herself. Intense #fatigue, #nausea, #vomiting, #overstimulation, high fever and dependent on tube feeding. …“
- @TiffyXDsweet
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Wird Zeit, dass das mal in jeder Hausarztpraxis ankommt. Die Patienten beschreiben das Phänomen absolut präzise und der Arzt macht ein Strich bei "Depression/Ängstlichkeit". Das ist inzwischen nicht mehr akzeptabel. Cave: Kinder beschreiben Tachykardie häufig mit "Angstgefühl".
Postural orthostatic tachycardia syndrome (POTS) can occur after Covid and in the 90-day period following vaccination. It is 5-fold more common with infection
nature.com/articles/s44161-0…@NatureCVR@CedarsSinai