Writer, speaker, science geek, cancer research advocate and activist. Living with ROS1 lung cancer since 2011. Cofounder @ros1cancer, @IASLC STARS. #LCSM
Joined June 2009
- Tweets 20,506
- Following 1,529
- Followers 5,376
- Likes 21,756
853 Photos and videos
Janet Freeman-Daily retweeted
24 Nov 2025
My friend @GinaHollenbeck was a fierce #lungcancer advocate—kind, smart, funny, and unafraid to challenge her own narrative.
In her powerful @IASLC #WCLC2021 talk, Gina explains why she stopped leading her story with “I didn’t smoke.” While many feel this pushes back against #stigma, she realized the binary approach of 'guilt and innocence' slows progress and perpetuates a harmful narrative that is profound and far-reaching.
Using the stigma to try to erase it only continues to label us, reduce our humanity, and our identity becomes a single story. Let's talk about RISK FACTORS. That's when people ask questions and listen!
Since Dana Reeve’s diagnosis, I’ve seen how focusing only on people who “never smoked” divides our community and completely erases the person behind the disease. The truth is simple: NO ONE earns lung cancer, and NO ONE deserves it.
Gina's message calls us back to compassion, understanding, and respect. Please listen and help change the conversation. youtu.be/l_uBBmiVkZI?si=W_vJ…
#LCAM #LCSM #NoStigma @EGFRResisters @YoungLungCancer @ros1cancer @ALKPositiveinc @Exon20Group @RetRenegades @KRASKickers @NTRKers @BrafBombers @RETpositive @LUNGevity @lcrf_org @AmLungCSI @OncogeneCancer @NLCRTnews @LungCancerRx @heidi_onda @DrewMoghanaki
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25 Nov 2025
Hm. X says my account is based in Malaysia. I was recently on a cruise from Tokyo to Bangkok with shipboard wifi provided by Starlink. I logged into X ONCE (on the South China Sea between Hong Kong and Taiwan), 100s of miles from Malaysia. Methinks the algorithm needs more work.
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Janet Freeman-Daily retweeted
21 Nov 2025
If anyone knows @DRCamidge, they know how patient-focused he's been in his 20 years of leading lung cancer research. (And funny - just ask @JFreemanDaily 😉 .)
But he hasn't been doctor only - he's been a stage 4 lung cancer patient, himself. Recently, he decided to open up about his experience after learning of his diagnosis 3 years ago.
I had the privilege of hearing more about his experience firsthand and am grateful to him for continuing to help people, in spite of his incredibly busy schedule (BTW this was the 2nd time in 1 month he gave us @Patient_Story his time. The 1st was for our partnership with @ros1cancer on an educational series).
Want inspiration on how to approach life? Take a look & listen 👇
thepatientstory.com/patient-…
#lungcancer #cancerawareness #stage4 #patientcare
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19 Nov 2025
@ComcastCares I use @SaneBox to keep my Inbox under control but you keep blocking their access to my @comcast email account! What gives? Please stop blocking their access to my account! bit.ly/3w1Eazs
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Janet Freeman-Daily retweeted
5 Sep 2025
Cancer research is not a line item. It’s a lifeline. 🔬 @ZEROcancer, @FightCRC, @LUNGevity, @PanCAN, @AACI_Cancer @SusanGKomen join forces to urge sustained federal funding that fuels progress saves lives. Read the special co-authored AACI Commentary conta.cc/3HRf2ab
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Janet Freeman-Daily retweeted
12 Jun 2025
📺BREAKING VIDEO Overview:
🚨FDA Approves TALETRECTINIB
🫁NSCLC ROS1
🎉 TRUST-I Trial: 90% ORR
📊72% DOR ≥12mo naive!⏲️
📰 Article With References: oncologytube.com/fda-approve…
#CancerResearch #LungCancer #ASCO25
@imedverse
@OncoAlert
@GlopesMd
@NarjustFlorezMD
@CParkMD
@weoncologists
@CharuAggarwalMD
@AndresFCardonaZ
@DrSanjayPopat
@Larvol
@brunolarvol
@ADesaiMD
@amersameer
@DevikaDasMD
@lungoncdoc
@JFreemanDaily
@dr_yakupergun
@ONCOassist
@JulienMazieres
@RenoHemonc
@RManochakian
@IvyLorena_Md
@Fiatopichan
@MLadanyi
@LungSummit
@tnewsomdavis
@ilimlevebilimle
@medicalwatchBC
@FawziAbuRous
@myfight4cancer
@drdeniztural
@FernandoOnco
@hematologo
@gerlach_d
@DipeshUpretyMD
@TaraHerrmannPhD
@DrMirallas
@dralanreyesonco
@DMSLung
@EuniceAlejand15
@YYElamin
@Raj_Singh_MD
@Rf_Correa
@YoungLungCancer
@mtymtyyanmaz
@OncoReporte
@StephenVLiu
@Latinamd
@SuyogCancer
@ozdogan_md
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Janet Freeman-Daily retweeted
11 Jun 2025
FDA approves taletrectinib for #ROS1 NSCLC based on TRUST I and TRUST II trials showing 1L RR 85-90% with 63-72% of responses lasting ≥12 months and post TKI, RR 52-62%. Taletrectinib has selectivity over TrkB so should have less neurotoxicity.
fda.gov/drugs/resources-info…
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16 May 2025
Pleased to announce the 2024 ROS1 Cancer Innovation Award winners! prlog.org/13076799-the-ros1d…
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Janet Freeman-Daily retweeted
1 Apr 2025
The entire STAT staff is updating this story about layoffs at HHS. There will be a lot of info.
But the short version is this: a lot of the people who would keep drugs safe and effective, to protect patients in trials, and to fight bird flu and future pandemics are gone -- even though it seems the scientists in charge of directly reviewing new medicines are mostly protected at FDA.
Per Robert Califf: "[The FDA] as we’ve known it is finished, with most of the leaders with institutional knowledge and a deep understanding of product development and safety no longer employed.”
statnews.com/2025/04/01/hhs-…
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Janet Freeman-Daily retweeted
14 Feb 2025
My approach to treatment is: I’m not looking to throw a Hail Mary touchdown — the odds aren’t in my favor. I need to keep getting first downs. First downs keep me in the game, and the longer I'm in the game, the more time research has to catch up!
22 first downs - think about all the moments and milestones this patient was able to experience with family & friends thanks to SBRT. That is HOPE!
14 Feb 2025
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15 Feb 2025
A thoughtful perspective on importance of government-supported research infrastructure. It's not perfect, and could use reform. But you can't reform something that disappeared due to lack of funding for labs, support staff, equipment and office space.
nytimes.com/2025/02/14/opini…
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4 Feb 2025
On this #WorldCancerDay, take steps to amp up your lung cancer patient advocacy! Applications are now open for the 2025 IASLC STARS PRA & Scholar Programs. STARS can help you develop and enhance research advocacy skills. iaslc-stars.org
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25 Jan 2025
DEI is not the same as diversity in clinical trials.
Diversity in clinical trials aims to test new drugs in a wide variety of people, because response to some medicines can vary by gender, age, ethnicity, and genetics.
statnews.com/2025/01/23/fda-…
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Janet Freeman-Daily retweeted
26 Nov 2024
As we embark on Thanksgiving week I want to take a moment to reflect on this year and my family. Unfortunately I lost my sister to lung cancer in August. It was devastating news when she was diagnosed in 2022 and it's still a shock to believe my vibrant, passionate, loving sister is gone. November is Lung Cancer Awareness Month. When Susan was diagnosed we had no idea that lung cancer was the number one cancer killer - killing more people than breast, prostate and colon cancer combined. There is also no universal screen the way there is for breast, prostate and colon. There is an urgent need for research to develop better screening methods for this deadly disease. Lung cancer can impact people who smoked and people who never smoked. Our family is committed to bringing awareness to lung cancer and working to develop earlier screening methods.
As we sit down for Thanksgiving this year with friends and family I want to share this quote from Susan's blog that she wrote a before she died.
"As a person I have changed a lot, and probably the most important lesson I have learned is just to focus and enjoy the present! Life is unpredictable for everyone, with many unknowns, but there is a lot of beauty in everyday life. My goals going forward are to enjoy the present as much as possible and fight for better understanding and cures for this disease."
May you all enjoy the moment, enjoy your friends and family and appreciate the beauty in everyday life.
blog.youtube/inside-youtube/…
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Janet Freeman-Daily retweeted
26 Nov 2024
When Susan was diagnosed with lung cancer we quickly learned we had many unanswered questions. We launched the @23andme Lung Cancer Community with the intention of getting answers. We brought together over 20 lung cancer advocacy organizations to collectively make a difference. Our goal for this study is to understand more about how our genetics influence lung cancer so we can improve detection, reduce risk, and have better treatment options. If you have lung cancer or know someone who has lung cancer, please encourage them to sign up.
23andme.com/lung-cancer/
@LUNGevity @Exon20Group @ALKPositiveinc @ICANdecide @TheALCF @lcfamerica @metcrusaders @NTRKers @KRASKickers @ros1cancer @LCRFawareness
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26 Nov 2024
A sincere "thank you" to whoever tweaked my X feed to remove ads and people I don't follow.
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Janet Freeman-Daily retweeted
21 Nov 2024
The physician’s duty is not to stave off death or return patients to their old lives, but to take into our arms a patient and family whose lives have disintegrated and work until they can stand back up and face—and make sense of—their own existence. @rocketgirlmd
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Janet Freeman-Daily retweeted
18 Nov 2024
Trying to surf the wave a little: For those up for a redux on all past @OncLive How This is Building Me podcasts on the people behind cancer, cancer medicine and cancer science - they will be slowly recommented on with links on @drcamidge.bluesky.social
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Janet Freeman-Daily retweeted
15 Nov 2024
A treat to hear about novel therapeutic frontiers in fusion positive NSCLC from Dr. Alice Shaw at #CFS24. Profound efficacy with targeted agents for #ALK #ROS1 #RET fusion positive NSCLC - critical to identify these fusions when present. Exciting new drugs coming!
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17 Nov 2024
I woke up this morning inspired to write. Here's what popped into my head. #LCSM #lungcancer
grayconnections.net/2024/11/…
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