Joined December 2012
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Thank you, @RepMichaelRulli , for cosponsoring the Kidney Care Access Protection Act (H.R. 6214) and the Restore Protections for Dialysis Patients Act (H.R. 2199)! These bills are critical to strengthening Medicare's kidney care and dialysis benefits, while ensuring that people living with kidney disease have choice in their insurance coverage and access to innovative, lifesaving treatments. We appreciate your leadership and commitment to improving patient outcomes.
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Protecting access to high-quality kidney care requires continued collaboration between policymakers and advocates. That's why KCP members were proud to meet with Kendall Smith from @RepFletcher’s office to discuss key policies that support patient-centered care and innovation across the kidney care continuum, including the Kidney Care Access Protection Act (KCAPA) and the Restore Protections for Dialysis Patients Act. We appreciate the Congresswoman and her staff for prioritizing solutions that help ensure people living with kidney disease have access to the care and support they need.
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Thank you, @RepBlakeMoore for cosponsoring the Kidney Care Access Protection Act (H.R. 6214)! This legislation is critical to strengthening Medicare's kidney care and dialysis benefits and ensuring people living with kidney disease have access to innovative, lifesaving treatments. We appreciate your leadership and commitment to improving patient outcomes.
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ADVOCACY IN ACTION: This week on Capitol Hill, KCP members had productive meetings with Members of Congress and their staff about supporting the Kidney Care Access Protection Act and the Restore Protections for Dialysis Patients Act. These bills are crucial to strengthening and expanding access to quality, innovative kidney care. Take a look at some of our highlights 📷
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More than 50 KCP members were on Capitol Hill today advocating for policies that expand access to high-quality, innovative kidney care. We urge Congress to support the Kidney Care Access Protection Act and the Restore Protections for Dialysis Patients Act to ensure people living with kidney disease have access to the care, coverage and support they deserve.
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11M U.S. workers are living with kidney disease, costing businesses $100 billion each year. Today, @KidneyFund took this issue to Capitol Hill, elevating solutions that reduce spending and protect the nation’s workforce. Learn more: bit.ly/3R05EFH
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Today is AMKD Awareness Day. People of west or central African ancestry who inherited certain variations of the APOL1 gene are at higher risk for APOL1-mediated kidney disease (AMKD), a form of genetic kidney disease. KCP supports @KidneyFund's call to action: kidneyfund.org/APOL1aware. Join the movement: bit.ly/4d0ghjc #AMKDAwarenessDay #KidneyHealth #APOL1Aware
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KCP is pleased that House Committee on Ways & Means Health Subcommittee leaders are dedicating their time today to explore treatment improvements for individuals with kidney disease, and, importantly, at the midpoint of National Kidney Month bit.ly/4bmOLLC
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During the hearing, the Subcommittee heard testimony from a home hemodialysis patient, leading nephrologists and researchers, and Akebia CEO/prior KCP Chair John Butler. The consensus was clear that the current system does not work for patients. bit.ly/post-hearing
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@RepDelBene appreciates the bipartisan work of the Congressional Kidney Caucus, which she co-chairs with @RepCarolMiller, and raises the need for additional funding for @Kidney_X
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@RepRudyYakym discusses the need to ensure patients have access to choices in all aspects of their care, including the opportunity to dialyze at home.
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John Butler discusses how new approaches to TDAPA will allow a significant access improvement for drugs like DefenCath.
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@RepTenney: "We have a diagnosis issue where we should have more effective integration between primary and nephrology care so we can minimize or prolong the onset of ESRD."
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@RepHorsford discusses impediments and challenges to dialysis care associated with transportation problems that have jeopardized his rural constituency's access to services.
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@RepBlakeMoore discusses what improvements are needed in the ESRD system for sustainability, including payment for clinical labor and adequate reimbursement that must be part of a more stable system.
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@RepDannyDavis: "I am leading with @MikeKellyPA the Restore Act to help patients stay connected to prevention, education, and benefits." congress.gov/bill/119th-cong…
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Witnesses, including John Butler and Dr. Suzanne Watnick, speak to how the current payment system stifles innovation and how @RepCarolMiller's bill, KCAPA, will start fixing that. congress.gov/bill/119th-cong…
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@RepBrianFitz: "The Restore Act, which I support with @MikeKellyPA, will help ensure comfort and care continuity in their coverage for the full 30 months."
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@RepCarolMiller discusses barriers to home dialysis care and her legislation in development to improve access by improving incentive structures. congress.gov/bill/119th-cong…
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John Butler: "When you start dialysis, you deserve the same innovations other patients get, your legislation will help improve and ensure that."
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