The forget-me-not collective quilt is a venue to highlight the art, lives, and stories of people living with me so they may be more seen and heard. The project enables participants to represent their story of how their lives have been impacted. This graphic tells how to sign up.

This 3-D Printer Flows Concrete Like Cake Frosting!

a friendly reminder

Spider Vein (Telangiectasia) Treatment with Immediate Visible Results

This interview with U of Edinburgh geneticist Chris Ponting about Sequence ME & Long Covid has had more than 800 views. youtube.com/watch?v=fyWw2kvJ…

New article released today by our team. We highlight how the lived experience can and should be part of all stages of research and never just tokenism. Patients are the expert in their condition and there is always more to hear and learn from them. link.springer.com/article/10…

Why microdosing GLP1a/GIP agonist (Tirzepatide) helps POTS/MCAS/Long COVID/Functional GI symptoms. #POTS #MCAS #LC #DGBI #microdosing I had an epiphany a few months ago. One of those “why didn’t I realize this sooner” moments.

Yes in sensitive patients I sometimes use 1/60 th of the starting dose!

“Exposure to respiratory viruses before a baby’s first birthday — when immune systems are immature and before most childhood vaccinations — consistently predicted reduced earnings, education and health decades later.”

I’m so excited. My secret (not so secret) observational experiment is about to begin. This is a once in a lifetime opportunity for wastewater surveillance. FIFA World cup. 1/ @SecureBio scientificamerican.com/artic…

– You seem awfully obsessed with that branch #longcovid #postcovid #ableism #accessibility #satire

We need to rewrite the textbooks!!! This blows my mind🤯! Instead of what we always assumed about mitochondria in the axons producing energy, NOPE. Backwards! They're actually using energy to build a gradient. I'm wondering if this is analogous to how we make red blood cells. 1/2

Using multiple medical paradigms is valuable because one can see what another one misses. A few examples: Chinese medicine can help biomedicine distinguish an acute infection from a reactivated infection when biomedicine only sees a positive test. Biomedicine can help Chinese medicine distinguish EBV from CMV, explaining why different interventions work. Chinese medicine can help biomedicine distinguish phenotypes of inflammatory bowel disease, explaining why patients with the same diagnosis often respond differently to treatment. The goal in integrative medicine is to use each paradigm where it has the greatest explanatory power, not to discard one paradigm over another.

Children with Long COVID had measurable retinal microvascular changes. buff.ly/fPSg320 In 74 kids ages 7–17, scans found wider arterioles, wider venules, and a higher A/V ratio, consistent with endothelial dysfunction. The eye may help track pediatric Long COVID.

#FrailAndFurious campaign update: CMS just issued new guidelines on work requirements for #Medicaid & made it harder for people with ME/CFS, Long COVID, & IACCs to get exemptions. We are fighting! More info here: meaction.net/post/we-re-furi… #PwME #disability #MECFS

Sometimes I make memes for fun.

Brain-retraining logic applied to a broken leg to show how illogical it is: Stumble, notice the leg, get anxious about standing, avoid standing, standing feels harder, avoid it more. Conclusion: no fracture, just a fear-avoidance loop. Reassurance and graded standing will fix it.

I didn't have it on my calendar to do any writing this week. That...changed. Unscheduled post on the Substack, up now. open.substack.com/pub/likean…

The reason we think dandelions are weeds is because of a 1950s marketing campaign. Dandelions, native to Europe and Asia, were brought to North America in the 1600s by European colonists who grew them deliberately. Every part is edible. The leaves are a salad green, the flowers were made into wine, and the roots were roasted as a coffee substitute and used medicinally for liver and kidney conditions for thousands of years. They were a kitchen-garden staple well into the 1800s. The shift happened after World War II, when 2,4-D (originally developed for chemical warfare research) was approved as a residential herbicide. Companies like Scotts built the modern lawn-care industry around the idea that a perfect green lawn meant zero broadleaf plants. Dandelions, being bright yellow and resistant to mowing, became a visible enemy, and the campaign worked. By the 1970s, "dandelion-free" was synonymous with "well-kept." They aren't native, but they aren't doing significant ecological harm either. The herbicides used to kill them, on the other hand, kill bees, contaminate groundwater, and have been linked to non-Hodgkin lymphoma in humans. If you hate dandelions, it's most likely due to a marketing campaign that ran before you were born.

Hey @WIRED, how about interviewing neuroscientists who are actually studying the brains of people with #LongCovid? I'm available, and so are many others in the field. "When the brain gets stuck in a feedback loop of fight or flight" What does that even mean? #Pseudoscience

Rita Moreno performing "Fever" on the Muppet Show with Animal on drums which originally aired almost 50 years ago in the UK on September 12, 1976 and in New York on September 20, 1976 which earned her a Primetime Emmy Award.