Our mission is to improve access to diagnosis, research, and care for all individuals with undiagnosed and ultra-rare conditions.
Joined November 2021
- Tweets 30
- Following 27
- Followers 137
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3 Photos and videos
On behalf of 30M Americans w/ rare diseases, we thank @SenJohnKennedy for voting YES on the Senate LHHS bill—preserving $18M for UDN encouraging a $9M increase. His support ensures LA families & others nationwide access the answers & hope the UDN provides. 💙 #UDNF #UDN
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On behalf of 30M Americans w/ rare diseases, we thank @SenJackReed for voting YES on the Senate LHHS bill—protecting $18M for UDN recommending a $9M increase. His leadership ensures RI families & others nationwide benefit from UDN’s pioneering model of care. 💙 #UDNF #UDN
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On behalf of 30M Americans w/ rare diseases, we thank @SenHydeSmith for voting YES on the Senate LHHS bill—protecting $18M for UDN recommending a $9M increase. Her support helps MS families & others nationwide benefit from UDN’s one-of-a-kind work. 💙 #UDNF #UDN
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On behalf of 30M Americans with rare diseases, we thank @SenGaryPeters for voting YES on the Senate LHHS bill—maintaining $18M for UDN recommending a $9M increase. His support helps MI families & others nationwide access diagnoses, care & hope. 💙 #UDNF #UDN
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On behalf of 30M Americans w/ rare diseases, we thank @LisaMurkowski for voting YES on the Senate LHHS bill—maintaining $18M for UDN recommending a $9M increase. Her support strengthens UDN’s ability to bring AK families answers, care & hope. 💙 #UDNF #UDN
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On behalf of 30M Americans with rare diseases, we thank @SenJohnHoeven for voting YES on the Senate LHHS bill—protecting $18M for UDN recommending a $9M increase. His leadership helps ND families & others nationwide access diagnoses, care & hope. 💙 #UDNF #UDN
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We thank @SenOssoff for voting YES on the Senate LHHS bill—safeguarding $18M for UDN urging a $9M increase to expand impact. With leaders at Morehouse School of Medicine, his support gives GA families access to answers & hope. 💙 #UDNF #UDN
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On behalf of 30M Americans w/ rare diseases, we thank @LindseyGrahamSC for voting YES on the Senate LHHS bill—safeguarding $18M for UDN encouraging a $9M increase. His support strengthens UDN’s ability to bring SC families answers, care & hope. 💙 #UDNF #UDN
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On behalf of 30M Americans with rare diseases, we thank @PattyMurray for voting YES on the Senate LHHS bill—protecting $18M for UDN recommending a $9M increase. With sites at UW & Seattle Children’s, her leadership gives WA families hope for diagnoses and answers. 💙 #UDNF #UDN
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On behalf of 30M Americans with rare diseases, we thank @MartinHeinrich for voting YES on the Senate LHHS bill—maintaining $18M for the UDN encouraging a $9M increase. His support helps NM families & others nationwide access care and diagnoses💙 #UDNF #UDN
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On behalf of 30M Americans w/ rare diseases, we thank @SenatorRounds for voting YES on the Senate LHHS bill—safeguarding $18M for UDN recommending a $9M increase. With a site at Sanford Health, his support ensures SD families access to hope, care & answers. 💙 #UDNF #UDN
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On behalf of 30M Americans w/ rare diseases, we thank @SenatorFischer for voting YES on the Senate LHHS bill—maintaining $18M for UDN recommending a $9M increase. Her support ensures NE families & others nationwide benefit from the UDN’s pioneering care. 💙 #UDNF #UDN
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On behalf of 30M Americans with rare diseases, we thank @SenJeffMerkley for voting YES on the Senate LHHS bill—preserving $18M for UDN encouraging a $9M increase. With UDN researchers @Univ_Of_Oregon, his support means access to diagnoses & hope for OR families. 💙 #UDNF #UDN
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On behalf of 30M Americans w/ rare diseases, we thank @SenMullin for voting YES on the Senate LHHS bill—protecting $18M for UDN encouraging a $9M increase. His support helps OK families & others nationwide benefit from UDN’s pioneering work. 💙 #UDNF #UDN
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On behalf of 30M Americans w/ rare diseases, we thank @SenatorCollins for supporting the Senate LHHS bill—maintaining $18M for UDN encouraging a $9M increase. Her support sustains the UDN’s unique model of care, giving ME families diagnoses, care & hope. 💙 #UDNF #UDN
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On behalf of 30M Americans w/ rare diseases, we thank @SenatorShaheen for voting YES on the Senate LHHS bill—preserving $18M for UDN calling for a $9M increase. Her support strengthens the UDN’s network, giving NH families & others a chance for answers & hope. 💙 #UDNF #UDN
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On behalf of 30M Americans w/ rare diseases, we thank @JerryMoran for voting YES on the Senate LHHS bill—safeguarding $18M for UDN calling for a $9M increase. His leadership ensures KS families & others nationwide continue to access the UDN's unique model. 💙 #UDNF #UDN
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On behalf of 30M Americans with rare diseases, we thank @SenCapito for voting YES on the Senate LHHS bill—maintaining $18M for the UDN encouraging a $9M increase. Her support helps WV families & others nationwide find diagnoses, care & hope. 💙 #UDNF #UDN
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On behalf of 30M Americans with rare diseases, we thank @SenGillibrand for voting YES on the Senate LHHS bill—safeguarding $18M for the UDN calling for a $9M increase. With a site at Mount Sinai, her leadership brings vital care and hope to NY families. 💙 #UDNF #UDN
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On behalf of 30M Americans w/ rare diseases, we thank @LeaderMcConnell for voting YES on the Senate LHHS bill—maintaining $18M for UDN recommending a $9M increase. His support strengthens UDN’s unique ability to bring KY families diagnoses, care & hope. 💙 #UDNF #UDN
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