Neuroaffirming ADHD/ASC coach; writer; media and communications bod; and Associate Editor at @the_polyphony. This is a dormant account. See pinned post.
Joined March 2021
- Tweets 381
- Following 1,793
- Followers 458
- Likes 491
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We left! See you somewhere over the rainbow (where my name's the same). Or on LinkedIn, if you must.
Meanwhile, still need contribs to our 'MedHums 101' and 'In Practice' projects:
MedHums 101: thepolyphony.org/category/co…
In Practice: thepolyphony.org/category/co…
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Another beautiful piece added to our 'In Practice' collection!
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It's been amazing working on this takeover - so pleased to have it in full on the site now!
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Aly F retweeted
7 Aug 2025
I was asked about my opinion on this recent study into #MECFS and I wanted to share here as well. First and foremost, sincere congratulations to the research team for some stellar work. I will never stop cheering for groups that are working to uncover the biological 1/
7 Aug 2025
1) The DecodeME study compared DNA of ca. 15,000 ME/CFS patients and 250,000 controls and found significant differences in 8 regions of our genome.
The Manhattan plot below shows the genes and chromosomes involved.
Let’s unpack the results 🧵
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This has been such a joy to work on - really looking forward to seeing the contributors on their panels from tomorrow.
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Love this. I still mask in public and it is def stigmatised. Most disabled people I know do not mask and most do not accommodate my masking. I am routinely excluded from social events because I think people find even being out with a masked person embarrassing/ difficult.
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Recently saw and forgot to note a Judith Butler quote about misconceptions re gender performativity. Something about there being no pre-gendered subject; it not being the case that people get up in the am and decide what gender to perform. Can anyone point me to that quote? TIA!
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CfP: Narratives of health resilience: Prescribed confinement, forced displacement, and the stakes of global climate change - D/L 21/5/25
call-for-papers.sas.upenn.ed…
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Getting so much out of working on this new creative practice research project at @the_polyphony with my colleague Grace Brimacombe-Rand! Here's the latest contribution from @GeorgiaPoplett
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Aly F retweeted
⏰ 3 WEEKS TO GO... to the deadline for workshops, poster and oral presentation submissions for the Global Empathy in Healthcare Network symposium
🔗 Find out more: global-empathy-in-healthcare…
#empathy #healthcare #education
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Aly F retweeted
Fascinating to hear about Olivia Dahl’s work with Caspar Eric (poet with CP) - ‘School for Crip Poetry’ - creative spaces for disabled people to reflect on disability through collective poetry. Establishing shared history; collective energy inherent in writing together #CDS24
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Aly F retweeted
Online book launch for Heavy Metal and Disability: Crips, Crowds, and Cacophonies
Very proud to have co-authored a chapter in this, the first scholarly edited collection on disability & heavy metal.
eventbrite.co.uk/e/heavy-met…
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This really was a moving as well as fascinating event
25 Apr 2024
tell me why I teared up twice during
@anna_stenning's book launch, once while sarah lucas spoke, and again when @DrJamesMcGrath read out his poem.
what a lovely session chaired by @aryathampuran and facilitated by @Incidentallyb
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Aly F retweeted
23 Apr 2024
enjoyed this, 'In Praise of Bad Writing' by @JuliaBell, rang true to a lot of my experience of creative writing classes / workshops
tlth.co.uk/inpraiseofbadwrit…
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What a brilliant methodology piece. When I read articles like this it gives me faith there's a space for me (always working in crip time) in this field. Also made me think in new ways about my relationship with obstructive sleep apnoea and my CPAP machine...
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Aly F retweeted
25 Mar 2024
Meet our keynote speakers, part 2! Ria Cheyne (@riacheyne) will join us to present on “Disability Studies and Children’s Literature: Spaces of Possibility”.
Remember to register to join us: crassh.cam.ac.uk/events/4104…
Looking forward to welcoming you all!
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Aly F retweeted
5 Dec 2023
My book UNHEARD: The Medical Practice of Silencing is out 4th July 2024! Pre-order here geni.us/Unheard
Being heard & taken seriously should be a fundamental part of healthcare. In UNHEARD I look at why this doesn’t always happen & what we can do about it.
@katierpacker
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Aly F retweeted
22 Mar 2024
Calling writers! I am writing something about embodied #writing and would love some recommendations of writers who write from within the body, visceral, sensory, where content dictates form. Ie, illness narrative that writes from within (not about) the illness. #memoir
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