Family is the basic unit of society. But what happens when a promised "safe and effective" medical procedure acts like a hardrive wipe of all experiences? Relationships rooted in shared experiences are destroyed. 275 family members shared their experiences with
#ECT and how it impacted their loved ones. This peer-reviewed article (published today) in Psychology and Psychotherapy: Theory, Research and Practice.
My dad, a gentle, soft-spoken, hero-of-a-man, had never previously been candid with me about his thoughts witnessing my ECT experience.
When I asked him if he'd be willing to share a statement for the media about the article giving family members a voice, he sent me the following:
āThe immediate effects of my daughterās ECT were startling: memory loss. We are, after all, the sum of our memories. She knew I was her father, but she did not remember anything about our relationship. I was told this would be short-term. They lied. Even worse was the long-term effect on her physical health. It was a prescribed massive electrical injury, again, and again, and again. Typical long-term results of multiple electrical injuries include neurological damage, depression, anxiety, PTSD, migraines, hearing loss, reduced cognitive abilities, and/or attention difficulties, along with chronic pain. She got most of those, plus some extra.ā
I wish our ECT experience was an anomaly. I wish that raw pain had been isolated to a single family to protect the others. Sadly, these survey results indicate more families were harmed in ways far worse than I was.
This is why the
@FDA must enforce their 2018 ruling adulterating ECT devices and
@CMSGov must cut off funding until doctors have training in how to chose an electrical dose that can reliably replicate research findings on their individual patient with a unique head size and shape.
The last survey response highlighted in the article is a devastating example of what can happen when a doctor isn't trained in how to choose a correct dose, the clinic isn't prepared for manufacturer identified treatment consequences, and the hospital's lawyers bury it.
My dad's heartbreaking explanation of his witnessing my ECT experience could have been so much worse in this medically sanctioned Russian Roulette.
#AuditECT
@Chris_E_Harrop @LisaTMSA @ReadReadj @BasedMikeLee @MakeAmericaHA
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