Stage 4 Cancer Caregiver; 🇮🇳 1st Lung Cancer Patient Advocate & 1st Cancer Reseach Patient Advocate; CoFounder @IndiaALK & TWRP-India; Advisor; PhD, MPharm

Joined September 2017
242 Photos and videos
From the sacred days of Navratris and the joyous celebrations of Eid, to the vibrant New Year festivals across India and the globe - it is a season that reminds us of our shared humanity. 🌍 In this spirit of collective strength and new beginnings, I am humbled to share a project that has been close to my heart for a very long time. ✍️📖 I am officially beginning the journey of writing my memoir: a story that explores the most profound human paradox. It is a story of Love and Hope - two forces that often appear to be the most fragile, yet in our hardest moments, prove to be the most powerful strengths we possess. 🕊️ While this began as a personal journey through a cancer diagnosis of my loving wife Kusum, it is a story for anyone, anywhere, facing their own 'impossible' mountain. This book is: ❤️ A Universal Love Story that transcends the physical. 🤝 A Compassionate Guide for anyone navigating caregiving, loss, or a life-altered state. ⚖️ A call for Systemic Change in healthcare, exploring how we fight for a better world while finding the grace to accept life’s hardest 'no.' To ensure this mission continues to serve others, all royalties from this book will be dedicated to supporting cancer patients and advocacy work through our foundation. 🎗️ Just as these global festivals celebrate the triumph of light and the power of the spirit, this book is about our collective journey to 'Rise to Survive.' Wishing you a season of peace, strength, and boundless hope. 🙏 #RiseToSurviveCancer #GlobalHope #Navratri #EidMubarak #NewBeginnings #UniversalLove #PatientAdvocacy #HealthcareReform #LCSM #Cancer #Caregiver
3
607
Today would have been Kusum's birthday. I marked the day with a run at iconic India Gate to raise awareness for Lung Cancer & Research - and later spent time at an orphanage for children with physical and mental disabilities. A birthday remembered not through sadness, but through purpose. Cancer took away years we hoped to share. It did not take away her impact. Happy Birthday, Kusum 💛🎂🎗️ #LungCancer #PatientAdvocacy #ResearchSavesLives #HappyBirthday
4
90
Writing a memoir is exhausting. Not because of the words. Because of the memories. Every chapter means revisiting moments of hope, fear, love, loss, and everything in between. But if our journey can help even one patient or caregiver feel less alone, it's worth every page 💛 #LosingIsNotAnOption #RiseToSurviveCancer #MemoirWriting #Love #Hope
25
Vivek Tomar #RiseToSurviveCancer retweeted
I think the health insurance industry in India is in free fall. With very low penetration anyway, these experiences leave people with no trust. When agents earn their livelihood by denying claims, there can be no redemption. IRDAI and GIC need to wake up.
7
18
38
2,145
Vivek Tomar #RiseToSurviveCancer retweeted
This organisation mis-represents a number of leading cancer centres including @TataMemorial, @UTMDAnderson @cityofhope. With very little evidence to support their claims. I request them to send data on randomized trials to justify what they say. cancer-treatment.net/

5
14
2,370
A patient needs a life-saving medicine. The licence to import it in India for personal use is FREE. Yet many families end up paying agents and losing valuable time to get medicines even during widely used patient assitance program, simply because they don't know the process. To help patients and caregivers, I created a free step-by-step tutorial explaining how to obtain the import licence yourself. Considering the number of queries I continue to receive, this remains a challenge for many patients and families. Unfortunately, some are still being charged unnecessary fees for a process that is free. Hence, sharing this resource again. Link in comments below 👇 ⚠️ Note: The tutorial reflects the process currently followed to obtain an import licence for personal use. As with any regulatory process, requirements may evolve over time, so please verify the latest guidance from the relevant authorities when applying. #ImportLicense #PatientsAssitance #PatientAdvocacy #AccessToMedicines
1
5
9
618
Vivek Tomar #RiseToSurviveCancer retweeted
#ASCO26 @oncodaily awards happening now. @TataMemorial @cspramesh Breakthrough research award- Dr Hasmukh Jain who made CAR T affordable in India. @batraatulonc @ASCO @SuyogCancer @GevTamamyan 👏👏👏
2
21
45
2,636
Vivek Tomar #RiseToSurviveCancer retweeted
This is the impact you can have by contributing to @ConquerCancerFd @ASCO Open up your hearts, folks
There’s a story behind every cancer conqueror. For these researchers, securing the funding needed to pursue their work is the next step toward tomorrow’s breakthroughs for every cancer, every patient, everywhere. You can help support the next generation of researchers and vital programs today: bit.ly/4wLCCtH #ASCO26 #ResearchConquersCancer #ConquerCancer
1
7
704
Thats amazing - Congratulations @Amolpatel_dr , and thank you for bringing up such important topic at @ASCO - which could save lung cancer patients of LMICs from one of the worst toxicity of cancer treatment i.e., 'Financial Toxicity'
More than 400 attendees at ASCO education session in Lung cancer lead by @JordiRemon where we discussed “Less is More”. Thank you @asco for giving this opportunity to present on “Low dose Immunotherapy”. Awesome global representation. Access to novel therapies is human right!
1
5
122
Vivek Tomar #RiseToSurviveCancer retweeted
Replying to @R2SurviveCancer
Following in Kusum and your footsteps Vivek ji 😌🧿
1
1
79
Vivek Tomar #RiseToSurviveCancer retweeted
Honoured to share that I've been selected as an @IASLC STARS Scholar 2026 — 1 of only 9 international patient advocates chosen globally for this highly competitive programme. STARS = Supportive Training for Advocates on Research & Science. The Scholar tier is its most advanced level. As a Stage IV lung cancer patient & Executive Director of @ALKPositiveIndia, India's first ALK lung cancer advocacy org — this recognition lands deeply. I'll attend the World Conference on Lung Cancer (#WCLC26) in Seoul this September as a STARS Scholar — bringing India's patient voice into global lung cancer research. India has been underrepresented in this conversation for too long. For every lung cancer patient in India — this one's for you. 🇮🇳 #LCSM #LungCancer #IASLC #STARSScholar #ALKPositive #PatientAdvocacy #India
7
3
17
3,362
I am proud to be co-author for this study with Urvashi ji !! #ResearchSavesLives #LungCancer #ClinicalTrials #India #IASLC #WCLC26
I will be presenting at #WCLC26 in Seoul. My research explores the underrepresentation of Indian patients in global lung cancer clinical trials with implications for policy, research and ultimately access to cutting-edge therapies. Looking forward to the discussion. #IASLC #ClinicalResearch #LungCancerResearch @icmrnine @doctorsoumya @RajivKumar1 @PahleIndia @SewantiLimaye @womenlifthealth @VanitaNoronha @oceanblue11oct @ChandnaHimani
3
3
320
Vivek Tomar #RiseToSurviveCancer retweeted
Biomarker-Based Eligibility for Lung Cancer Screening - A proteomic biomarker-based risk model can improve short-term lung cancer risk assessment with the potential to identify individuals who would benefit from low-dose computed tomography screening. jamanetwork.com/journals/jam…
1
59
Vivek Tomar #RiseToSurviveCancer retweeted
Announcing the 2027 @credoworkshop Plan well in advance and apply early Plenty of scholarship opportunities with stellar faculty @CancerGridIndia @ASCO @StJude @StJudeResearch @AACR @AACRFoundation @WHO @iaeaorg @CCan_org @uicc @myESMO @EORTC @TheLancetOncol @The_MRC @WHOSEARO
2
22
39
5,932
Clinical Trials are Not only about Science. For many families, they are also about Hope. Years ago, on International Clinical Trials Day, my late wife Kusum’s journey with Stage 4 ALK ve Lung Cancer (never smoker) and her experience as she was participating in her 1st clinical trial at that time - was shared on one of India leading news channels. Years later, message remains still relevant: - Research truly Saves Lives....But at same time, Awareness, Access, and Trust determine who benefits from this Research. - Access matters - Patient voices matter. On International Clinical Trials Day, today, perhaps we need to continue asking: How do we ensure more patients in India and LMICs (Low-Middle Income Countries) understand, and have access to research? #ICTD2026 #ResearchSavesLives #LMICs #Access #InternationalClinicalTrialsDay #PatientResearchAdvocacy @cspramesh @credoworkshop @CancerGridIndia @docpriyar @iscrindia @AnantBhan @IASLC @ASCO @OncoAlert @oncodaily @ALKPositiveinc @IndiaAlk
3
7
376
Some love stories are destined to be told. This book began long before I started writing - through years of love, caregiving, fight with cacner, hope, patient advocacy, helping others and memories that never really leave. Chapter 2 (Cancer Vs Love) authoring in-progress 💛 #Love #Hope #MemoirWriting #Book #Cancer #LosingIsNotAnOption #ResearchSavesLives #RiseToSurviveCancer
1
67
Vivek Tomar #RiseToSurviveCancer retweeted
Maybe this is exactly what we don't want. @mythicbxrn and @iamsrk this is what you should not promote. This increases cancer incidence @CancerGridIndia @TataMemorial @thePHFI @ICMRDELHI , #tobaccokills #SayNoToTobacco Celebrities aside
1
5
15
1,008
Vivek Tomar #RiseToSurviveCancer retweeted
Replying to @R2SurviveCancer
Happy Morher’s Day to you too
1
1
1
47
Vivek Tomar #RiseToSurviveCancer retweeted
Replying to @R2SurviveCancer
Happy Mother’s Day to you bro !
1
1
1
122
Vivek Tomar #RiseToSurviveCancer retweeted
Replying to @R2SurviveCancer
Happy mother's day to you and all parents like you. You don't need a uterus to be a mother, just a mother's heart. Many a times my husband is more of a mother to our daughter than I am.
1
1
2
347