6 Apr 2021
@biogen pls reconsider compassionate use of #tofersen4Lisa and lead by example. We know you have always been champions for #endALS #BiogenSayYestoLisa #MoreTime4Lisa #HumanityandScienceforLisa
1
2
30 Mar 2021
Thank you @CambridgePolice for your support and for keeping our troops safe. #tofersen4lisa #EndALS #dyingwaiting #HumanityAndScienceForLisa #moretimeforlisa @biogen
4
17
26 Mar 2021
Thank you @News12NJ for covering the rally by my community and for continuing to share my story. I'm so grateful for the support. #tofersen4lisa #dyingwaiting #endals #HumanityandScienceforLisa #Biogen
1
10
34
26 Mar 2021
Thank you @seanspicer @newsmax for sharing Lisa's story. We appreciate the outpouring of community support. #tofersen4lisa #dyingwaiting #HumanityAndScienceForLisa #endals @biogen @US_FDA
Donald Trump's 'Right to Try' might save this mom's life as she battles a rare form of ALS. Lisa Stockman Mauriello tells her story to @seanspicer. nws.mx/tv
2
7
25 Mar 2021
Thank you @edsilverman for your thorough article about Lisa's heartbreaking story and the challenge she and others with life-threatening diesease face. @biogen @US_FDA
#MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS #tofersen4Lisa
statnews.com/pharmalot/2021/…
12
15
24 Mar 2021
@CityofSummitNJ, @CoryBooker @RepMalinowski - Every day counts. Pls @biogen and @US_FDA open access to #tofersen. If not under EAP, then P3b safety OR open label for those dying w/ #ALS SOD1/AV5 mutation. #BiogenGrantAccess #HumanityandScienceforLisa #MoreTimeforLisa #tofersen
24 Mar 2021
Lisa's response letter to @Biogen can be accessed via this post. Please read and share widely. @US_FDA facebook.com/groups/fighting…
#MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS #tofersen4Lisa #dyingwaiting
1
2
24 Mar 2021
For those of you following my friend Lisa’s story please take a minute to read her thoughtful response to @biogen who has now denied her request for compassionate use of Tofersen three times. #ALS #MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS
24 Mar 2021
Lisa's response letter to @Biogen can be accessed via this post. Please read and share widely. @US_FDA facebook.com/groups/fighting…
#MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS #tofersen4Lisa #dyingwaiting
1
3
24 Mar 2021
Hello @onepeloton community! Show your support for Lisa and join us tomorrow at 8am EDT for @AllymissLove's live ride! Use hashtag #tofersen4Lisa. Let's do this! bit.ly/3sqtEAI
#MoreTime4Lisa #HumanityAndScienceForLisa #endALS #peloton
7
24 Mar 2021
Lisa's response letter to @Biogen can be accessed via this post. Please read and share widely. @US_FDA facebook.com/groups/fighting…
#MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS #tofersen4Lisa #dyingwaiting
1
6
19
24 Mar 2021
Thank you @amirahalidrus @FierceBiotech for bringing EAP and compassionate use to the forefront and sharing Lisa's story. @biogen @US_FDA
#ALS #MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS
24 Mar 2021
“Offering tofersen outside of the study would risk failing to complete the study and risk failing to obtain access for all SOD1-ALS patients," Biogen said fiercebiotech.com/biotech/bi…
1
8
24 Mar 2021
@11AliveNews thank you for sharing Lisa's story & your support to help Lisa get URGENT access to
@biogen's #tofersen. Please continue to spread the word! @US_FDA bit.ly/3rqWwrf
#ALS #MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS #tofersen4lisa
2
4
24 Mar 2021
@Chance4Lisa
@Biogen's response is WRONG. On multiple occasions, #FDA has encouraged manufacturers to give patients #ExpandedAccess & assuaged concerns that EAPs could harm eventual approval.
#MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS #tofersen4Lisa
3
4
24 Mar 2021
Thank you @BeingWellpub for sharing Lisa's story and joining our movement. #tofersen4Lisa
#ALS #MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS
24 Mar 2021
Let's help Lisa qualify for emergency use authorization to get the medication she needs #tofersen4lisa medika.life/a-mothers-fight-…
3
9
24 Mar 2021
Thank you @robturnerwrites for sharing Lisa's story coupled with the utter urgency that she needs #tofersen now. @biogen @US_FDA bit.ly/31bqIvL
#MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS #tofersen4Lisa
2
5
19
23 Mar 2021
Thank you @wcnc for sharing my story. Yes, it's heartbreaking but @biogen can make my days lighter by starting a Ph3b safety trial or allowing me in #VALOR. Do the right thing. PLEASE. @US_FDA #MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS #tofersen4Lisa
23 Mar 2021
Lisa Stockman-Mauriello talks to us about her heartbreaking story. wcnc.com/article/life/life-s…
8
10
23 Mar 2021
@iamdebbiem Thank you so much for lending your support to Lisa as she asks @biogen for access to #tofersen to give her a few more months with her beautiful family. @US_FDA
#MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS #tofersen4Lisa
4
7
23 Mar 2021
@biogen PLEASE open a Ph3b safety trial or #VALOR to Lisa and patients in DESPERATE need.
@US_FDA PLS work with #Biogen to make this happen. #MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS #tofersen4Lisa
5
12
23 Mar 2021
Here is denial letter #3 from @biogen. We will not give up. PLEASE open a Ph3b safety trial or #VALOR to Lisa and patients in DESPERATE need. @US_FDA PLS work with #Biogen to make this happen. #MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS #tofersen4Lisa
ALT Here is denial letter #3 from @biogen. We will not give up. PLEASE open a Ph3b safety trial or #VALOR to Lisa and patients in desperate need. @US_FDA PLS work with #Biogen to make this happen. #MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS #tofersen4Lisa
1
26
35
22 Mar 2021
💔video by Lisa: x.com/i/status/1373814013168…
@Chance4Lisa can't wait. @biogen: #access to #tofersen @RockOutALS @KirtSpeaksALS @ALSMNDAlliance @ALSACT @ALSCanad @PMS4ALS @LesTurnerALS @ProjectALSorg #MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS #tofersen4Lisa
22 Mar 2021
I can't wait. PLEASE @biogen give me access to #tofersen. PLEASE. @RockOutALS @KirtSpeaksALS @ALSMNDAlliance @ALSACT @ALSCanada @LesTurnerALS @PMS4ALS @ProjectALSorg
#MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS #tofersen4Lisa
3
22 Mar 2021
Thank you @MinoSean. @ChirfiG @adrianasolimine @JohannaJobin - can you PLEASE help Lisa gain access #tofersen and soon? In case you missed it, this is an urgent message to @biogen from Lisa. #MoreTime4Lisa #BiogenSayYesToLisa #HumanityAndScienceForLisa #endALS #tofersen4Lisa
3
4