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May 12
Replying to @narendramodi
हमारी शिक्षा नीति #ROTELearning (रटने पर आधारित पढ़ाई) पर आधारित है, जिसे #WorldForum (वैश्विक मंच) पर #NotRecognised (मान्यता प्राप्त नहीं) है।
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Here here There unethical research will send us all to an early grave. The hard thing to swallow was that they knew what they were doing #notrecognised #cheaperthanchimps
I couldn't put a price on the Unethical Research so many of us were subjected to, but if I had to, it wouldn't be this. Unethical Research led to life changing injury and should be viewed as criminal injury. The govt should be putting another zero on the end of their offer.
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Dominated the inquiry and forgotten and ignored by the powers that be. The Haemophilia Story @TeriG2569 #notrecognised
I was just wondering if this haemophilia gene was still around. Would you have treated me as a haemophiliac victim any better? @cabinetofficeuk @IBCA_UK
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@IBCA_UK @cabinetofficeuk @David_Cameron @TeriG2569 @NickTorfaen @whoeverelsegivesashit I wasn’t a drunk driver who crashed my car and needed a single emergency blood transfusion, only to be struck by terrible luck with one contaminated pint that gave me HCV. I was a two-year-old haemophiliac who bit his tongue and was treated with substandard, virus-infected, unpurified Factor VIII concentrate. At seven, I was a haemophiliac who needed teeth extracted and was given the same contaminated Factor VIII. As a child playing ordinary kids’ games, I ended up in hospital again and again with a bruises — and each time I received yet more of the same infected Factor VIII. Every single time, for over thirty years, my blood wasn’t tested to monitor my haemophilia or my Factor VIII levels. It was tested to measure the damage the treatment itself had caused: to count my HCV viral load and to see how my liver was coping. Who came up with the figures for unethical research? 45k really I gave my life to this research, it must be worth more as an IBCA tariff or You leave us haemophiliacs with no options apart from legal action in the courts. #notrecognised
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Eugenics always springs to mind when I ask the question, "Why me? and why all the Haemophiliacs?" Why infect us time and time again? Why didn't the factor treatment get pulled straight away in the 70's after they see it spreading hepatitis amongst haemophilac children? Not an accident? #notrecognised
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@LBCNews @NickFerrariLBC nearly 2 years after Sir Brian concluded “This was NOT an accident”. Victims are still fighting to be heard. HCV haemophiliacs who were multiply re infected as children have not had academic impacts recognised. We have asked @NickTorfaen to look at new research which clearly states a child with HCV will simply not have the same academic results as a healthy child. We are still waiting a response. Please can you run an article on this huge scandal that is still trying to be covered up. We have people who have previously not spoken out and have anonymity who now sadly feel they need to be heard to get true justice. #NotAnAccident #NotRecognised @cabinetofficeuk @IBCA_CEO_UK @IBCA_UK @bloodinquiry @HaemoSocUK @HaemoSocUK_PI @Gooders2023 @GraymF1 @LabLab15460 @DuryTerren13578 @KieranMullanUK
21 May 2024
‘The fact that he as Health Secretary in the mid 80s has never met a victim of the worst NHS disaster in history…I can’t explain how offensive that is.’ The Haemophilia Society’s Clive Smith brands Lord Clarke's behaviour during the infected blood scandal ‘appalling’.
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@IBCA_UK @ceo_ibca @cabinetofficeuk @NickTorfaen @Keir_Starmer #NotRecognised after everything that has been done to the haemophiliac community you still find ways to twist the knife. @ellapickover @AP @Nigel_Farage @Gooders2023 @grahammanning
@Prof_JonMont is a bioethics council member @Bayer are the pharmaceutical company behind the #infected-blood disaster that has infected & killed 1000’s of #haemophiliacs in the UK #HIV #HEPC this man can not sit on the expert group for compensation
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I know Clive is in charge of this part. But why did you not join the others and suport the hepatitis c trust letter about the unethical testing? I know the word haemophilia isn't in the letter but you must know it's all about us. #Notrecognised
A national service of remembrance for the infected blood community is being held at St Paul's Cathedral in London on Tuesday 19 May 2026 at 11am. To register your interest, fill in the form through the link below. docs.google.com/forms/d/e/1F…
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Letter sent by Hep C Trust signed by campaigners to the Minister @NickTorfaen re unethical testing on haemophiliac children was not signed by @HaemoSocUK why was this? Your community is disappointed #NotRecognised @IBCA_CEO_UK @Gooders2023 @GraymF1 @LabLab15460
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#NotRecognised @NickTorfaen why don’t you recognise that a child with HCV will not receive the same academic results of a healthy child. We ask you to re look at this we do not want a lump sum as per THS letter we was not consulted! @Gooders2023 @GraymF1 @IBCA_CEO_UK @IBCA_UK
Article in the national library of Medicine. Research in 2024/25 concluded “that a child with HCV will not achieve the same academic results of a healthy child” @NickTorfaen @cabinetofficeuk children infected with HCV need to be recognised @IBCA_CEO_UK @Gooders2023 @GraymF1
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Haemophiliacs abused by the very people they trusted with their health. @GOVUK @NickTorfaen are happy for this to continue with amounts of £10-15k for unethical research @IBCA_CEO_UK @Gooders2023 @GraymF1 @ellapickover @AP #NotRecognised #NotAnAccident @bloodinquiry @IBCA_UK
As an infected victim and used in this unethical research, I think it's worth more money than the health effects of the viruses themselves. This is the crime to compensate. The viruses were innocent.
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@NickTorfaen @cabinetofficeuk #Haemophilic Children knowingly infected with #HIV & #HEPC in the 1970’s & 80’s were unethically used for medical research purposes Why has Sir Robert Francis deemed that for this crime that £10k to £15k should be awarded to those infected Lost childhoods ..lost lives #NotRecognised @bloodinquiry @HaemoAPPG @CliveEfford @AndyBurnhamGM @DianaJohnsonMP @ellapickover @maitlis @GwynneMP @Ifeatherstone @SKinnock @katiegollop @AlisonEBennett @PutneyFleur @Emma5News @Ms_AlexBaker @profEmmaCave @BethWinterCynon @RachaelMaskell @GradySNP @fionatwycross @JessicaToale @cajardineMP @jim_reed @GlennWilko58 @TeriG2569 @Gooders2023 @LabLab15460 @TaintedbldMedia @Factor8Campaign @Haemosexual @DuryTerren13578 @sianberry
#Infectedblood #Haemophiliac Children used in unethical medical research knowingly infected with #HIV #HEPC & studied in the 1970’s 1980’s Infected due to imported Factor8 from the US 🇺🇸 sourced from prisoners & skid row donors The biggest prison was in #Arkansas Cummins Prison Infecting UK 🇬🇧 #Haemophiliacs Decades of cover up & denial ….. @NickTorfaen @cabinetofficeuk You are trying to rewrite history
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£10k unethical research we really are cheaper than chimpanzees. Why are THS not all over this. Could it be because they reassured parents in the 80s that treatment was safe…. @NickTorfaen @IBCA_CEO_UK #NotRecognised HCV haemophiliacs need justice for lost education potential.
#NotRecognised #NotAnAccident why did consultants use f8 knowing the risks of infection. Why did they not use alternative safe treatment, answer they needed the haemos for research @NickTorfaen @IBCA_CEO_UK @katehaemophili1 @ConanMci @Factor8Campaign @GraymF1 @GOVUK @maitlis
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@DavidLammy @NickTorfaen @cabinetofficeuk How can this be right ? When UK #Haemophiliacs have been unethically tested on as children infected with #HIV & #HEPC #Infectedblood 1970’s 1980’s disaster breaching human rights & the Nuremberg Code & for this receive £10,000 to £15,000 in compensation !! “It was no accident” Sir Brian Langstaff #NotRecognised #Haemophilia @IBCA_CEO_UK @bloodinquiry @RobertJenrick @DianaJohnsonMP @maitlis @AndyBurnhamGM @PennyMordaunt @DavidDavisMP @Nigel_Farage @KemiBadenoch @HaemoSocUK @katehaemophili1 @HaemophiliaScot @ConanMci @Dr_PhilippaW @TeriG2569 @DuryTerren13578 @LabLab15460 @Factor8Campaign @TaintedbldMedia @GlennWilko58 @CliveEfford @HaemoAPPG @JeremyClarkson @bnorval48 @StephenFlynnSNP @RupertLowe10 UK court case where Islamist killer Fuad Awale won significant taxpayer-funded compensation and legal costs (around £240k total) because his human rights (right to private life under ECHR Article 8) were deemed breached by solitary confinement in prison,
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HCV haemophiliacs lost their chance of good jobs when they was multiply re infected by @GOVUK with a “soup” of viruses #NotRecognised not the same as wholebloods @NickTorfaen @katehaemophili1 @ConanMci @bloodinquiry @IBCA_CEO_UK @GraymF1 @maitlis @DuryTerren13578 @LabLab15460
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#NotRecognised Sir Brian said “this was not an accident” why are @GOVUK not acknowledging lost education for HCV haemophiliacs who were knowingly multiply re infected @NickTorfaen @IBCA_CEO_UK @katehaemophili1 @ConanMci @Factor8Campaign @LabLab15460 @GraymF1 @DuryTerren13578
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#NotRecognised there is no compensation for being knowingly infected. Haemophiliac children were abused by the state @NickTorfaen @cabinetofficeuk @IBCA_CEO_UK @katehaemophili1 @ConanMci @GraymF1 HCV haemos lost education due to multiple reinfections @LabLab15460 @maitlis
Infected Blood Scandal infections were not only preventable but there were warnings from the medical community that were ignored by successive governments - @mikejwood Shadow Minister (Cabinet Office)
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No compensation for lost education & job prospects. @DHSCgovuk knew risks of using large pools for F8 children were knowingly infected HCV haemos #NotRecognised @NickTorfaen @IBCA_CEO_UK @cabinetofficeuk @katehaemophili1 @ConanMci @GraymF1 @LabLab15460 @maitlis time to hear us!
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We are not the same! Haemophiliacs were given dirty F8 by consultants who knew the risks of HCV This has not been recognised HCV haemos have lost education #NotRecognised @NickTorfaen @cabinetofficeuk @IBCA_CEO_UK @katehaemophili1 @ConanMci @GraymF1 @maitlis @LabLab15460
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