@IBCA_UK @cabinetofficeuk @David_Cameron @TeriG2569 @NickTorfaen @whoeverelsegivesashit
I wasn’t a drunk driver who crashed my car and needed a single emergency blood transfusion, only to be struck by terrible luck with one contaminated pint that gave me HCV.
I was a two-year-old haemophiliac who bit his tongue and was treated with substandard, virus-infected, unpurified Factor VIII concentrate.
At seven, I was a haemophiliac who needed teeth extracted and was given the same contaminated Factor VIII.
As a child playing ordinary kids’ games, I ended up in hospital again and again with a bruises — and each time I received yet more of the same infected Factor VIII.
Every single time, for over thirty years, my blood wasn’t tested to monitor my haemophilia or my Factor VIII levels. It was tested to measure the damage the treatment itself had caused: to count my HCV viral load and to see how my liver was coping.
Who came up with the figures for unethical research? 45k really
I gave my life to this research, it must be worth more as an IBCA tariff or You leave us haemophiliacs with no options apart from legal action in the courts.
#notrecognised